Center faculty, staff and students have authored books, monographs, and reports on a range of topics concerning disability.
BOOKS
Ben-Moshe, L., Cory, R. C., Feldbaum, M., & Sagendorf, K. (Eds.). (2005). Building pedagogical curb cuts: Incorporating disability in the university classroom and curriculum. Syracuse, NY: The Graduate School, Syracuse University.
Students in SU’s Disability Studies program recently published this new monograph. The editors and major contributors are leaders of the Beyond Compliance Coordinating Committee. The book, which reflects the mission of the group, is remarkable because it was conceived and created entirely by students. The new book recognizes that compliance with the Americans with Disabilities Act and other anti-discrimination laws is important, but that often those measures do not go far enough to ensure that universities acknowledge and value the contributions of all students, including students with disabilities.
Biklen, D., with Attfield, R., Bissonnette, L., Blackman, L., Burke, J., & Frugone, A. (2005). Autism and the myth of the person alone [Qualitative Studies in Psychology]. New York: NYU Press.
This book challenges the prevailing, tragic narrative of impairment that so often characterizes discussions about autism.
Bogdan, R. (1988). Freak show: Presenting human oddities for amusement and profit. Chicago: University of Chicago Press.
Robert Bogdan's fascinating social history brings to life the world of the freak show and explores the culture that nurtured and, later, abandoned it. In uncovering this neglected chapter of show business, he describes in detail the flimflam artistry behind the shows, the promoters and the audiences, and the gradual evolution of public opinion from awe to embarrassment. Freaks were not born, Bogdan reveals; they were manufactured by the amusement world, usually with the active participation of the freaks themselves.
Ferri, B. A., & Connor, D. J. (2006). Reading resistance: Discourses of exclusion in desegregation and inclusion debates [Disability Studies in Education Vol. 1]. New York: Peter Lang Publishing Group.
Reading Resistance confronts longstanding exclusionary practices in U.S. public schooling. Beth A. Ferri and David J. Connor trace the interconnected histories of race and disability in the public imagination through their nuanced analysis of editorial pages and other public discourses, including political cartoons and eugenics posters. By uncovering how the concept of disability was used to resegregate students of color after the historic Brown decision, the authors argue that special education has played a role in undermining school desegregation. In its critical, interdisciplinary focus on the interlocking politics of race and disability, Reading Resistance offers important contributions to educational research, theory, and policy.
Kluth, P., Straut, D. M., & Biklen, D. (Eds.). (2003). Access to academics for all students: Critical approaches to inclusive curriculum, instruction, and policy. Mahwah, NJ: Lawrence Erlbaum Associates.
The authors of this book join a growing number of voices calling for teachers in diverse, inclusive schools to move beyond facilitating social participation in classroom activities and consider ways to intellectually engage ALL learners.
Perlin, M. L., Kanter, A., Treuthart, M. P., Szeli, E., & Gledhill, K. (Eds.). (2006). International human rights and comparative mental disability law: Cases and materials. Durham, NC: Carolina Academic Press.
The issue of the human rights of people with mental disabilities has been ignored for decades by the international agencies vested with the protection of human rights on a global scale. It is only within the past several years that society has begun to understand that violations of persons’ mental disability rights are violations of human rights. This is the first and only casebook that considers the intersection between international human rights law and comparative mental disability law; it provides a systematic investigation of all of the relevant issues. Topics covered include a comparison of civil and common law systems, an overview of international human rights law, an overview of regional human rights tribunals, an overview of U.S. constitutional mental disability law, mental disability law in an international human rights context, comparative mental disability law (civil and common, scholarly articles and case law), the use of institutional psychiatry as a means of suppressing political dissension, the “universal factors” in this area of law, and the globalization of disability law.
Taylor, S. J. (2009). Acts of conscience: World War II, mental institutions, and religious objectors [Critical Disability Studies]. Syracuse, NY: Syracuse University Press.
In the mid- to late 1940s, a group of young men rattled the psychiatric establishment by beaming a public spotlight on the squalid conditions and brutality in our nation’s mental hospitals and training schools for people with psychiatric and intellectual disabilities. Bringing the abuses to the attention of newspapers and magazines across the country, they led a reform effort to change public attitudes and to improve the training and status of institutional staff.
Taylor, S. J., & Bogdan, R. (1998). Introduction to qualitative research methods: A guidebook and resource (3rd ed.). New York: John Wiley.
Over the two decades since the publication of the first edition of Introduction to Qualitative Research Methods, qualitative research has risen from a novel and controversial approach to the study of social issues to a widely practiced method for understanding how people view themselves and the world around them. New journals, university courses, handbooks, and encyclopedias are now devoted to the study and practice of qualitative research, but there is still only one comprehensive, practical guide to the collection and presentation of qualitative data.
Taylor, S. J., & Blatt, S. D. (1999). In search of the promised land: The collected papers of Burton Blatt. Washington, DC: American Association on Mental Retardation.
These collected papers pay tribute to one of the most innovative, philosophical, and compassionate minds of the century. In Search of the Promised Land compiles the very best of Dr. Blatts work. Selections from Christmas in Purgatory, Exodus From Pandemonium, The Family Papers, and Souls in Extremis, along with poems, lectures, and essays are combined in this very special volume.
Walker, P. M., & Rogan, P. (2007). Make the day matter! Promoting typical lifestyles for adults with significant disabilities. Baltimore: Paul H. Brookes Publishing Co.
Adults with disabilities enjoying active, rewarding, and meaningful daytimes in their communities—that's the reality when service providers and programs tap into innovative support strategies that really work. Throughout the book, detailed case stories from across the country combine with practical guidelines to show professionals how to replicate success stories in their own communities. And with the extensive discussion of organizational change, programs will have a blueprint they can use to make the critical shift from facility-based to community-based services.
Monographs and Reports
Jung, Y., & Bellini, J. (2009, September). Rates of Access to the State/Federal Vocational Rehabilitation Program, Service Provision, Successful Closure, and Reasons for Closure for Persons Living with HIV/AIDS. Syracuse, NY: Advanced Rehabilitation Research and Training Project, Center on Human Policy, Law, and Disability Studies, Syracuse University.
"This descriptive population study was prepared to provides descriptive analysis of the population of vocational rehabilitation (VR) consumers with HIV/AIDS in the years 2002–2007, with comparisons made to the population estimates for numbers of persons identified as living with HIV/AIDS and comparison to the larger population of VR service applicants with various disabilities in the 50 states and the District of Columbia. The primary purpose of this report was to contribute key descriptive data to rehabilitation professionals, rehabilitation researchers, and policy makers regarding access to and participation in the VR Program as well as employment outcomes of persons living with HIV/AIDS. Ultimately, by providing these benchmark data, we hope that the population with HIV/AIDS will have greater access to and participation in the VR Program and will receive more appropriate, effective vocational services in the future" (p. 1).
Taylor, S. J. (2008, February). The direct support workforce crisis: Can unions help resolve this? [A Policy Paper from the Center on Human Policy]. Syracuse, NY: Center on Human Policy, Syracuse University.
This policy paper examines the controversy of national initiatives to unionize direct support workers in the private sector in developmental disabilities services. It explores the historical roots of efforts to address direct support workforce issues, reviews the role of unions in the field in the past, considers the fit between disability rights and worker rights, examines emerging support models, and comments on current union efforts. Click here to download this Policy Paper as a PDF.
Ahern, L., & Rosenthal, E., with Bauer, E., Calik, N., Kanter, A., Layikel, Ş., Okain, R., & Sundram, C. (2005). Behind closed doors: Human rights abuses in the psychiatric facilities, orphanages and rehabilitation centers of Turkey. Washington, DC: Mental Disability Rights International.
Behind Closed Doors describes the findings of a two-year investigation in Turkey by Mental Disability Rights International (MDRI) and exposes the human rights abuses perpetrated against children and adults with mental disabilities. Locked away and out of public view, people with psychiatric disorders as well as people with intellectual disabilities, such as mental retardation, are subjected to treatment practices that are tantamount to torture. Inhuman and degrading conditions of confinement are widespread throughout the Turkish mental health system. This report documents Turkey’s violations of the European Convention for the Prevention of Torture (ECPT), the European Convention on Human Rights (ECHR), the UN Convention on the Rights of the Child (CRC) and other internationally accepted human rights and disability rights standards.
Rosenthal, E., Kanter, A. et al. (2003, September 9). Foreign policy and disability: Legislative strategies and civil rights protections to ensure inclusion of people with disabilities. Washington, DC: National Council on Disability. Also available in HTML at http://www.ncd.gov/newsroom/publications/2003/
foreign03.htm.
"In 1996, NCD issued a report on foreign policy and disability that found that U.S. programs abroad did not conform to the letter or spirit of U.S. disability rights law. On the basis of recent legal developments, this paper demonstrates that current U.S. disability discrimination laws may now be found to apply to U.S. foreign programs operating abroad. NCD recommends that Congress instruct the State Department and United States Agency for International Development (USAID) to apply the protections of the Rehabilitation Act and the ADA to U.S. operations abroad" (pp. 2-3).