BULLETINS
The Center on Human Policy and its affiliated projects have produced a variety of bulletins presenting information based on and summarizing research findings relevant to community integration for people with developmental disabilities.
Implementation of Consumer-Directed Services for Persons With Intellectual or Developmental Disabilities: A National Study (2009) by Pam Walker, Amy Hewitt, Matthew Bogenshutz, and Jennifer Hall-Lande summarizes the results of a national study on the status of consumer-directed services for persons with intellectual or developmental disabilities. The study was conducted at the University of Minnesota’s Research and Training Center on Community Living and Syracuse University’s Center on Human Policy, and its purpose was to investigate how consumer control is being implemented across states. Additional themes included the exploration of strategies, challenges, and best practices of consumer-directed services and supports. Information was gathered through interviews with administrators of developmental disabilities services in 42 states. Lande, Research and Training Center on Community Living. | PDF | HTML | -
Policy Research Brief: Status of Institutional Closure Efforts in 2005 (2005) edited by Steve Taylor, Bonnie Shoultz, Pam Walker, and Sheryl Larson examines and summarizes the research and policy issues that state policymakers may face as they consider whether to increase, reduce, or close institutions in their own states. This Policy Research Brief was published by
the Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. |
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IMPACT: Feature Issue on Volunteerism by Persons with Developmental Disabilities (2001) includes articles that offer strategies and vision, encouraging greater inclusion of people with developmental disabilities in volunteerism. This bulletin was published through the IMPACT series of the
Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. |
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Policy Research Brief: Do We Really Mean Families for All Children? Permanency Planning for Children with Developmental Disabilities (2000) by Nancy Rosenau addresses supporting all children in families through permanency planning. Includes discussion of permanency planning policy, barriers, implementation, and recommendations. This Policy Research Brief was published by
the Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. |
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IMPACT: Feature Issue on Supporting Diversity (Summer 1996) edited by Betty Horton, Marijo McBride and Bonnie Shoultz explores ways in which services are and could be supporting people from diverse groups. It also highlights a number of individuals who tell their own stories. This bulletin was published through the Impact series of
the Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. [This issue of IMPACT is currently not available in electronic format. Please contact the
Center on Human Policy to obtain a copy.]
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IMPACT: Feature Issue on Institution Closures (Winter 1995/96) edited by Mary F. Hayden, K. Charlie Lakin, and Steve Taylor contains national information as well as a variety of articles on closing institutions written from the perspectives of self-advocates, professionals, parents, researchers, and policy makers. This bulletin was published through the Impact series of
the Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. [This issue of IMPACT is currently not available in electronic format. Please contact the
Center on Human Policy to obtain a copy.]
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Feature Issue on Supported Living (Autumn 1995) is a compilation of short articles describing supported living, giving numerous examples of agency approaches to supported living, and offers the perspectives of people with disabilities about supported living. This bulletin was published through the Impact series of
the Institute on Community Integration at the University of Minnesota in cooperation with the Center on Human Policy. [This issue of IMPACT is currently not available in electronic format. Please contact the
Center on Human Policy to obtain a copy.]
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Policy Bulletin on Safeguards addresses how safety can be increased by strengthening community and improving the assistance people receive. It also discusses the paradox of regulations.
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Policy Bulletin on Social Relationships is first of a series of bulletins summarizing research findings for those who make and are impacted by policy. This document looks at relationships between people with and without disabilities.
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Community Living for Adults is a newsbulletin highlighting promising practices, issues and resources in supporting adults in the community.
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Families for All Children highlights promising practices in family support services nationally, the Center on Human Policy's statement in support of families and their children, and issues and resources in family support.
The
Mid-State Early Childhood Direction Center developed its
bulletin with an important purpose in mind: providing a resource for people who parent and work with young children. The most recent issues include:
The
Syracuse University Parent Advocacy Center (SUPAC) is is one of thirteen (13) parent centers across the state funded by the
New York State Office of Special Education.
The SUPAC Newsletter is designed to provide parents, professionals, and community members with timely pertinent information on special education and disability topics including resources, regulations, news and trainings. SUPAC also distributes a series of
Parent Advocacy Handouts targeted to parents that review important subjects related to special education.
The Power of Our Voices, formerly
The Voice of Freedom, is a newsletter by and for self-advocates in the Central New York Region. Contributions to the newsletter are encouraged. If you have a suggestion, would like to write an article, or have ideas to make it better, call (315) 473-5080.
The Power of Our Voices will be published four times a year (July, October, January, April).
The Power of Our Voices is supported by the Self-Advocacy Association of NYS and the Center on Human Policy through a subcontract with the RTC on Community Living and Employment at the University of Minnesota.
FACT SHEETS
The Center on Human Policy and its projects have developed several brief and concise fact sheets on critical topics. These fact sheets are intended to provide basic information, and the Center can provide in-depth information on any of these topics.
INFORMATION PACKAGES
INFORMATION PACKAGES
The Center on Human Policy prepares packages of resources on various topics concerning people with developmental disabilities. These include selected articles, annotated bibliography and a range of other resources.
- Disability Studies: Information and Resources (2003) edited and compiled by Steven Taylor, Bonnie Shoultz, and Pamela Walker is an informatio package reflecting the diversity of the field of Disability Studies. Included are contributions representing different disability groups, perspectives, and disciplines, including sections on Disability Studies Books, Chapters, and Articles; Films and Documentaries; a listing of North American academic programs in Disability Studies; Periodicals; Special/Features Issues of Periodicals; Organizations; Special Interest Groups of Professional Organizations; Internet Resources; and Resources for Teaching Disability Studies, a special section that suggests books and readings on Disability Studies that can be used in courses in various academic disciplines. Available formats: | Microsoft Word | PDF | HTML
- Beyond Compliance: An Information Package on the Inclusion of People with Disabilities in Postsecondary Education (2003) compiled and edited by Rebecca Cory, Steve Taylor, Pamela Walker, and Julia White contains essays, reprints, and resources designed to assist postsecondary institutions to move beyond compliance and to include disabled persons in all aspects of campus life. It is not intended to provide step-by-step guidelines or to serve as a comprehensive manual on all aspects of inclusion and accommodations. Rather, it is designed to offer some perspectives, strategies, and resources that individuals can use to advocate for the inclusion of people with disabilities at universities and postsecondary institutions. (164 pages)
- Inclusion in Education: Issues and Resources (2003) edited by Rachael Zubal-Ruggieri and Valerie Smith represents a substantial revision of the previous information package, last updated in 1993. It contains an extensive annotated bibliography, selected readings on inclusive education, as well as information on Internet mailing lists, web sites, and selected organizations and projects providing information and services concerning inclusive education. A brief listing of current resources on IDEA is also included. (135 pages).
- Community Participation and Social Networks: An Information Package (2002) prepared by Pam Walker addresses issues and strategies related to promoting community membership for people with developmental disabilities.
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Resource Packet on Disability, Spirituality, and Healing (1999) by the Rev. Nancy Lane presents articles, an annotated bibliography, a course syllabus, and handouts on disability and spirituality. Much of the emphasis in this package is on the spiritual healing of wounds created within individuals by attitudes toward and discrimination against people with disabilities.
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Faith Communities and Inclusion of People with Developmental Disabilities (1998) by Mair Hall and Philip Lambert includes resources and information on books, articles, newsletters, and organizations that work to include people with developmental disabilities in the mainstream of faith communities. Also included are selected reprints that give examples of this work.
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Information Package on Managed Care and Long-Term Supports for People with Developmental Disabilities (1997) edited by Steve Taylor includes resources and materials on "managed care" for people with disabilities. The focus of this package is on long-term supports for people with developmental disabilities. The package contains a position statement on managed care, articles containing background information, and cautionary pieces about the potential dangers in managed care as well as a list of additional organizations to contact for further information. (105 pages)
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Women with Disabilities: Issues, Resources, Connections, Revised (1997) by Rannveig Traustadottir and updated by Perri Harris includes an article, "Obstacles to Equality: The Double Discrimination of Women with Disabilities," an extensive annotated bibliography, and annotated listings of resources, teaching materials, services, support groups, organizations, periodicals, and World Wide Web sites.
NOTE: A new bibliography is now available on women and disability.
- Materials on Self-Advocacy (1997) by Rachael Zubal, Bonnie Shoultz, Pam Walker and Michael Kennedy includes an overview article, a short listing of information available, and selected reprints. (20 pages)
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Innovative Practices in Supported Living: An Overview of Organizations, Issues, and Resource Materials (1996) edited by Kathy Hulgin, with Bonnie Shoultz, Pam Walker and Steve Drake, is a comprehensive resource package on supported living. It includes examples of agencies around the country that are successfully implementing a supported living approach and a discussion of related issues, such as housing and person centered planning. It also includes an annotated bibliography of written materials and information about World Wide Web sites that address supported living issues. (66 pages).
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Selected Issues in Family Support: A Compilation of Materials and Resources (1995) by Pam Walker focuses on selected issues in family support, including: family support principles; limitations of family support programs (related to race/ethnicity, culture, poverty, women, etc.); permanency planning; and state-level systems change advocacy. It contains various articles and annotated references relevant to these issues.
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Multiculturalism and Disability: A Collection of Resources (1993) by Susan O'Connor includes an overview article which offers a discussion on how disability should be included in the multicultural dialogue and an annotated bibliography of readings, organizations and resources dealing with multicultural issues. (70 pages)